Edited: Treatment with Temodar first then a resting phase followed by the phase 1 study using Avastin, Irinotecan and Temodar.
Yesterday we were all in church together. The Christmas program was wonderful! Our pastor asked our church to be in prayer and fasting for Andrew on December 17.
We pray for a miracle of healing to take place in Andrew's body.
He told me again this morning that he needs to get better, that he wants to get better.
Andrew had his simulation today. That is preparation for radiation. He should be starting within 10 days. They will call.
I think we have decided to go with a phase 1 study being conducted at All Children's Hospital here in St. Pete.
The combination of drugs has shown some promise. This is a hard decision because the potential side effects are greater than standard protocol. But after lots of research I am leaning toward the phase 1 study. My husband and I are going to give it a few days and pray about the treatment path.
Andrew is going through a lot right now. As you can imagine, this is very hard on a 12 yr. old.
He is on a wait list for physical and occupational therapy. That is very frustrating. We are limited in what we know to do with him as far as improving his function. In the meantime, his left arm dangles at his side and he walks crookedly and slowly. And the left side of his face does not cooperate with his right side.
Meanwhile I am...
Persisting in prayer despite the medical prognosis...BECAUSE of the medical prognosis.
Trying to make these days "normal" for all of our sakes.
Hoping Christmas will bring a miracle for Andrew and many others.
Keeping two words in my mind...BUT GOD.
Prayer requests for Andrew:
healing, of course
improved function on left side
no more headaches
restful sleep at night
hope and happy days
no negative side effects from treatment
I love you all for your continued prayers and sweet encouragements. God is Good and trustworthy.
"By His stripes, Andrew is healed..."